1000 paper cranes at Denver airport, Henry before he got out of the tub on his own, paper tablecloth wishes
The doctor's at Shriners offered a more refined diagnosis for Henry: ataxic cerebral palsy. Upon looking up the term this evening, I found there are hundreds of variations of this type of cerebral palsy. Henry's hips are very tight and the ataxia explains his short gait and attempting to balance on the outside of his feet.
It was wonderful to see so many supportive doctors and therapists. The Shriners Hospital is really a wonderful place. We were assigned a care coordinator and in the future, Henry can receive other services now that he is plugged into the system.
Today's visit meant we received a referral for fitting Henry for new orthotics which he desperately needs.
We also visited the a physical therapist at the hospital and she was so impressed to find Henry walking considering he has ataxia. She said, "He obviously has been working hard" and it was the only time I felt teary-eyed today.
She also told me that children with ataxia continue to develop skills much later than other children, but it takes a great deal of practice. In fact, many children will need to practice riding a bicycle for four summers before they are able to do it independently, but she reminded me to not give up.
This therapist also gave me attachments for Henry's tricycle to secure his foot so he can learn to ride independently.
Dandelion fabric (and Snow White and Seven Dwarves)
It honestly was one of the easiest, most coordinated doctor's visits I've ever experienced but still exhausted...
Also lovely to meet so many people experiencing similar paths with their children. I was fortunate enough to meet three different families and talking with them gave me solace.
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